Support for people with neurological conditions and their relatives
Being diagnosed with a neurological disorder can be extremely difficult to get your head around and you may feel a mixture of confusion and despair at first. Having a neurological disorder will undoubtedly change the way you live the rest of your life and this can be really hard to accept. If you need help or support, there are a number of different charities and organisations that can help you and you should never hesitate to contact your GP if you have worries or concerns or you simply want more information. Most charities offer help lines, where you can chat to trained professionals without having to come face to face with anyone or give your name to anyone. Organisations that can help include the Parkinson’s Disease Society, the Brain and Spine Foundation, the Alzheimer’s Society and the Multiple Sclerosis; there are many more out there and they can easily be found by using an online search engine.
If you have a relative or close friend that is diagnosed with a neurological disorder, this too can be very challenging and hard to grasp. If you are caring for somebody with a complex neurological disorder, you will undoubtedly find this both a physical and emotional rollercoaster. If you need to talk to somebody, you need more information or you need time out for yourself, talk to your relatives and friends and chat about your concerns; see if somebody can look after your loved one for a day or two while you recharge your batteries and have a bit of time to yourself.
If you need some support or advice and you don’t want to talk to somebody you know, you can contact Carers Direct, Carers UK or any of the charities listed above. If you want to find out about arranging additional medical care or some home help for your loved one, contact your Local Authority; they should be able to give you information on which services are available to you.